Rachel you have Fibromyalgia said my Rheumatologist last week. I had been told by my Physio and Osteopath that I have been presenting with Fibromyalgia type symptoms for a while now so there was no big surprise. Still it was a shock to hear. I have been suffering with back pain for around 12 years. Over this time it has become steadily worse to the point where the pain is nearly every day especially with my back and hips.
About 6 months ago I started getting aches and pains in my ankles and feet, then it started in my knees and legs, now the aches have started in the palms of both of my hands, and my wrists are sore to touch, so are my elbows. I also suffer from migraines, IBS and anxiety. I have had many blood tests and MRI scans. All have come back fine. Which is a good thing. Yes keep positive! Structurally I am in perfect condition!
After the Rheumatologist stopped poking me in all my joints and making me grit my teeth through the pain, he diagnosed me with Fibromyalgia.
How do I feel?
I’m not really sure, relieved to finally know why I am so tired and not many days goes past without me being in some sort of pain somewhere. The brain fog down I put down to being a busy working tired mum but this is also a symptom. Looking positively, I can research how best to help myself now I have a diagnosis.
A referral has been made to the pain clinic for pain injections, not sure about this yet.
It can just go away, slim chance yes but it can happen. My dad has Fibromyalgia too, unfortunately for him his has become a lot worse over the years instead of getting better. Did you know it can be hereditary?
Exercising is important. This is fine when I am not exhausted! My daughter goes to the gym with me so she will make sure I go, unless the pain is too much in which I will have to pass on going until the flare up passes. I do like Pilates and Yoga so I will keep up with those too. Meditation is supposedly went to help, I assume it is the mindfulness side of relaxation. I meditate quite often anyway, I find it very beneficial when I feel stressed.
So for now I am going to carry on as normal because I can’t change anything about my diagnosis. I just have to learn to live with it and manage the pain. I can certainly help myself and start listening to my body rather than pushing myself too far which do lead to a nasty flare ups.
Onwards and upwards and all that 🙂