I have fibromyalgia, what now?

Rachel you have Fibromyalgia said my Rheumatologist last week. I had been told by my Physio and Osteopath that I have been presenting with Fibromyalgia type symptoms for a while now so there was no big surprise. Still it was a shock to hear. I have been suffering with back pain for around 12 years. Over this time it has become steadily worse to the point where the pain is nearly every day especially with my back and hips.

About 6 months ago I started getting aches and pains in my ankles and feet, then it started in my knees and legs, now the aches have started in the palms of both of my hands, and my wrists are sore to touch, so are my elbows. I also suffer from migraines, IBS and anxiety. I have had many blood tests and MRI scans. All have come back fine. Which is a good thing. Yes keep positive! Structurally I am in perfect condition!

After the Rheumatologist stopped poking me in all my joints and making me grit my teeth through the pain, he diagnosed me with Fibromyalgia.

How do I feel?

I’m not really sure, relieved to finally know why I am so tired and not many days goes past without me being in some sort of pain somewhere. The brain fog down I put down to being a busy working tired mum but this is also a symptom. Looking positively, I can research how best to help myself now I have a diagnosis.

A referral has been made to the pain clinic for pain injections, not sure about this yet.

It can just go away, slim chance yes but it can happen. My dad has Fibromyalgia too, unfortunately for him his has become a lot worse over the years instead of getting better. Did you know it can be hereditary?

Exercising is important. This is fine when I am not exhausted! My daughter goes to the gym with me so she will make sure I go, unless the pain is too much in which I will have to pass on going until the flare up passes. I do like Pilates and Yoga so I will keep up with those too. Meditation is supposedly went to help, I assume it is the mindfulness side of relaxation. I meditate quite often anyway, I find it very beneficial when I feel stressed.

So for now I am going to carry on as normal because I can’t change anything about my diagnosis. I just have to learn to live with it and manage the pain. I can certainly help myself and start listening to my body rather than pushing myself too far which do lead to a nasty flare ups.

Onwards and upwards and all that šŸ™‚

 

21 Comments on I have fibromyalgia, what now?

  1. Kelly-Anne
    January 27, 2020 at 7:17 am (2 months ago)

    I’m sure it is going to take you a little time to process the diagnosis, but also I’m sure you feel at least you know what is up with you. I know someone who have fibromyalgia but there are some symptoms that I didn’t realise. Keep positive my lovely. You will alter certain aspects in your life to your condition.

    Reply
    • WhatRachelWrites
      January 27, 2020 at 9:34 pm (2 months ago)

      Yes it will and yes having a diagnosis does help me. There any many symptoms that I didn’t know I had until I was told. I will have to alter a few things but I will just see how it goes as time goes by.

      Reply
  2. Claire
    January 27, 2020 at 7:17 am (2 months ago)

    I am sorry to hear this but I am glad you have some answers.

    A friend has been going through the same and it has been incredibly difficult to get to the point where she has some relief from it.

    Wishing you well x

    Reply
    • WhatRachelWrites
      January 27, 2020 at 9:27 pm (2 months ago)

      I am relieved to finally have some answers. I am not at the point yet where I feel I need the pain clinic thankfully, the feet cramps, back ache and tiredness are what is really effecting me at the moment.

      Reply
  3. Aaron K Green
    January 27, 2020 at 8:44 am (2 months ago)

    As with any struggle, the first step is coming to terms with it and establishing how to carry on life as normal with it. I’m sorry you are struggling with this but it sounds like you have a firm grasp on how to move forward.

    Reply
    • WhatRachelWrites
      January 27, 2020 at 9:25 pm (2 months ago)

      Exactly. Its a new learning experience for me šŸ™‚

      Reply
  4. Jon
    January 27, 2020 at 12:23 pm (2 months ago)

    Wow! I’m so sorry you’ve been through this recently. I think it’s going to take time to adjust to all this but hopefully given enough time you will be able to make some changes to your lifestyle and then like you said ‘onwards and upwards’ šŸ˜‰

    Reply
    • WhatRachelWrites
      January 27, 2020 at 9:21 pm (2 months ago)

      Yes it will take time to learn how to manage it but I won’t let it stop me from living my life šŸ™‚

      Reply
  5. Talya Stone
    January 27, 2020 at 2:24 pm (2 months ago)

    So sorry to hear about your diagnosis! It’s always hard coming to terms with a new diagnosis. I’ve heard that acupuncture is supposed to be amazing at relieving the symptoms if that’s something you would consider?

    Reply
    • WhatRachelWrites
      January 27, 2020 at 9:20 pm (2 months ago)

      I have monthly acupuncture treatments which does help, my Osteopath is also teaching me different stretches to help ease the cramps in my hands and feet.

      Reply
  6. Sarah Howe
    January 27, 2020 at 4:29 pm (2 months ago)

    I am sorry you have had this diagnosis but I can imagine it is a relief to know what it is! I know a few people with fibro who do manage. It seems a case of seeing what helps. Wishing you lots of good wishes and hope you feel ok x

    Reply
    • WhatRachelWrites
      January 27, 2020 at 9:18 pm (2 months ago)

      Thanks, I just need to learn what helsp me so I can manage it as best I can.

      Reply
  7. Zoe
    January 28, 2020 at 9:09 pm (2 months ago)

    Knowledge is power. Now you have your diagnosis, you can assess the best treatment options and ways to manage. Sorry to hear about what you are going through, but you sound very strong willed and determined to overcome what you can!

    Reply
    • WhatRachelWrites
      January 28, 2020 at 9:38 pm (2 months ago)

      Absolutely! I am determined not to let it get to me.

      Reply
  8. Lyndsey O'Halloran
    January 28, 2020 at 9:48 pm (2 months ago)

    I honestly don’t know much about Fibromyalgia so it’s interesting to read more about. Sorry about your diagnosis!

    Reply
    • WhatRachelWrites
      January 29, 2020 at 9:44 pm (2 months ago)

      Fibromyalgia isn’t something that’s widely known or spoken about, I am glad you found my post interesting to read šŸ™‚

      Reply
  9. Jenni
    January 29, 2020 at 9:12 am (2 months ago)

    I’m sorry to hear that. I have to confess I know very little about fibromyalgia. It’s good though you at least have some answers.

    Reply
  10. Kara Guppy
    January 29, 2020 at 5:51 pm (2 months ago)

    I know a couple of people with this disease and it can be miserable at times. Hope you manage to find something that helps with the pain

    Reply
    • WhatRachelWrites
      January 29, 2020 at 9:31 pm (2 months ago)

      I am really hoping the vitamin supplements help. Thank you.

      Reply
  11. Laura Schwormstedt
    February 1, 2020 at 2:08 am (2 months ago)

    Oh no I’m sorry you are having to go through this but it’s also good to finally know what is wrong and then you can have a plan of how to treat it. Hoping it does just go away

    Laura

    Reply
    • WhatRachelWrites
      February 2, 2020 at 1:59 pm (2 months ago)

      Knowing means I can know research and help myself šŸ™‚

      Reply

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